Friday, April 13, 2012

Post @ muscle twitching and jerking limbs

I POSTED THIS TRYING TO FIND AN ANSWER....STILL, TO THIS HORRIFIC SITUATION THAT I HAVE BEEN PUT IN.
I KNOW, THERE ARE MANY OF US...OUT THERE SUFFERING AND ALL WE WANT...IS JUST WANT TO KNOW WHAT IT IS, THAT IS TAKING THE LIFE RIGHT OUT FROM UNDER US.
I BELIEVE THIS SUMS UP A LOT @ ME, BUT THERE IS SO MUCH MORE THAT I DIDN'T COVER HERE.

I WANTED TO ADD THAT I HAVE LOST SO MUCH TIME WITH MY FAMILY AND LOVED ONES...DUE TO THIS AGONIZING PLAGUE THAT HAS ME, BUT I PRAY THAT ONE DAY, I WILL BE PUT BACK TOGETHER AGAIN AND OUT OF THIS MISERY.:((

I really am posting this to all of u, but GTO67 caught my attention when they mentioned the part where the limbs twitch and jerk...and when everyone else seems to be still, when I seem to have to twitch or jerk. I have also been asked, if I knew that my head bobbled some. I really believe I do have neurological deficits, somewhere in my Central Nervous system or something. THIS is not anxiety...I don't believe it. I have never been anxious or nervous. I have always been patient and easy going, until after I had surgery on my neck and was hit by a nerve block(ESI) of my Thoracic.

"Allright, Im caught in this loop of muscle jerking and twitching. It goes like this: If im moving around (Walking, moving my body, ETC) ill get limb jerks, my arm, leg, head, whatever im moving, will move hard, or off, or wobbily. And when im sitting my muscles will twitch and my legs and arms and feet and all limbs will jerk suddenly at random (only one jerk, not liek a seizure or constant jerking, just once). Can anxiety cause this? Ive been trying to ignore this but thats not stoping it. Then I tell mself that it must be something else because it happens when I dont worry. I also cannot stop figgeting and moving around. Ill notice other people are sitting quietly and ill be twitching or touching myself, i cannot sit still at all. Does anyone know anything about this?"

When I copied what u said to quote it, some other words popped up that I didn't see in ur post or in any of the others for that matter, but some were things that I have experienced...like a Head injury(I did experience a head injury, in a car accident where I hit my head on the roof of the car and had a bad headache 10-15min. afterward) I did eventually have to have a C5-C6 spinal diskectomy because my head was forced in a downward positon. I also do not have ANY curve in my Cervical vertebrea. I was also diagnosted as having a Chiari Malformation of 6.5mm.(It is said that a person experiences neurological defecits over 5.5mm) I am really wondering @ this one, because my CM is 6.5, which makes me a candidate for neurological deficits. They changed this to Tonsilar Ectopia, so I don't know much @ it, but looking it up as we speak.

Head and face reconstruction( I didn't have reconstruction of the face persay, but they had to shave my hair...up to the top of my temples for another surgery that I had back years ago, a bone spur removal from left jaw) It was back 24 years ago and thought maybe, I had scar tissue or adheshions somewhere in there, from that surgery.
THIS WAS A YEAR AFTER THE CAR ACCIDENT AND I FELT GREAT. THIS IS MY HUBBY GARY ELMORE AND MY OLDEST SON SHANE, WHO WAS ONLY 3 1/2 HERE.



I have so many questions that it seems impossible to get the answer, but THIS is not anxiety...I don't believe it. I might be seeming anxious now, but that is because I just want answers and am fed-up being sick and being stuck in my bedroom...in BED. I am sooo sick and tired of being SICK!!

I have so many questions...Why does my face stay numb all day and the back of my neck stay tight and tense like a vice-grip is holding me? Why do I feel like my face is being pulled downward? Why do I have cramps/spasms in my neck?Why does the top of my head still hurt and sometimes, I can't even touch the top of my head? Why does my hair even feel like it hurts? Why does it feel like someone is pressing their thumb into my temples? I experience so many head pains and on my temporal region, it actually feels like someone is pressing inward on my head and sometimes, I will get totally numb on the left side of my face.
I must say that I have never been an anxious or nervous person. I have always been patient and easy going, that is until here recently from all of the stress from the pain, cramping, burning, aching and all of the agony that my body is dealing with. I still am a very patint lay-back person...and just don't think anxiety is the answer.  I have never experienced PAIN like this in my life...only after, the surgery on my neck did I start going downhill. Then, trying to relieve the pain...was I hit by a nerve block(ESI) of my Thoracic...so, there is a legitimate answer, I just can't give up.

After, I had that surgery on my neck I had to take medication that I never had to take, in my life. Before, the surgery I never even took anything for a headache hardly,never had to...much less these strong medications that the Docs have put me on and I do feel that IT, could be the culprit of most of my tremors and spasms and the toxic feeling that I experience. I believe medications, could be most of our problems, but what is a person to do that is in utter "Heck" from all of the agony their body is dealing with and in? It seems like the Docs just keep giving it to me, but I just want to FLUSH it all. I wish, I never had to take another pill!!
Also, due to ALL of the pain that I was experiencing after sugery, I was told that I needed to receive nerve blocks...that it, would relieve this pain. yah...yah...yah...NO, IT is a very dangerous procedure. I went ahead and did the series of 3 Epidural Steroid Injections, due to me not being able to even work or get anything done....and I was hit by a nerve block(ESI) of my Thoracic. I experienced what was called a "wet tap"..and it actually felt like a bolt of lightening had struck me, while I was just laying there and wonder if they hit my spinal cord or something.
I want to say that I had been a healthy person my whole life, until after my surgery. I know...I have NEVER felt so bad in my life...and sometimes, the pain can be unbearable. I just want to get well.
I have so many symptoms that it feels like I could even be dying sometimes, but I don't want to seem dramatic, but this IS a very dramatic situation here...It is BAD. I hurt so much and just want to feel somewhat like the person, I used to know.:(
I felt great b4 I had that surgery and only had a small sleeping problem, but it even makes me wonder that IF it all started, when I hit my head on the roof of that car...But I went right back into working 60+ hrs. a week, like nothing was wrong. The only thing that happened was that 8 years later, I got to where I couldn't find a comfortable place to rest my head, when I tried to sleep at night. I would move so many times that even my hubby would ask me, "Can't u find a good place to rest ur head?"
THERE IS A VERY NOTICABLE PLACE ON THE TOP OF MY HEAD, WHERE I HIT THE ROOF OF THE CAR, IN THE ACCIDENT.  I HAVE WONDERED WHY IT IS WHITE IN COLOR, TO WHERE THE OTHER PLACES AROUND IT, ARE DARK.(??)
U CAN ALSO SEE THE CHIARI MALFORMATION(OR TONSILAR ECTOPIA)-6.5MM
I HAVE BEEN DIAGNOSED AS HAVING A VENOUS ANOMALLY IN MY LEFT CEREBULLAR HEMISPHERE WITH AN "EMPTY SELLA", AS WELL.

It feels like something is terribly wrong in my body, but the NS won't look any further, because he can't see behind the titanium plates. He wouldn't do further testing to definitely rule out that it is the surgery or not that he did on my neck...so, I am still trying to find an answer...6 yrs later.
I appreciate anyone who responds. I need someone to give me a direction or someone who can give me some answers...OR HOPE EVEN.
I am sorry that this is so put-together and messy, but my mind is having trouble concentrating or focusing. I experience so much hormonal imbalance, because I was diagnosed having Addison's disease, to which does make a person have memory loss, emotional distress, incognitive moments and an array of other symptoms, but there is something else going on. My Endocrinologist even told me that I did have something else occuring with me and has sent me to a hand-picked Neurologist to see what he can find.
I really hate that my memory is affected. It really is hard, not finding it stored...where it suppose to be. It is giving me such a hard time to find the right words or I say the wrong things. There has been times where I will say thank u and really mean to say ur welcome. I will write words backward...and not just once or twice..I will do it over and over. I really have to concentrate to do what I want to do. My body seems not to function properly. It is like I have a short circuit somewhere.
If there are any of u out there, who read this....that are searching for answers like me...there is one thing that I can say....the main thing is to FIND the right Doc to treat u. Who do we see? Well, I truly believe that I do have a Central Nervous System problem, but where did my problem arise from? Is it from one of my surgeries, the nerve block or some Autoimmune disease other than the Addison's.
I hope...all of u have found ur answers and are on the road to recovery.
Take care and God Bless always.:))<3 Karen
Ps. I will keep watch here and update this information, for I feel I am on the right track and I'm getting closer to finding my answer....so, don't give up looking for urs, as well.:)

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