AS LONG AS THERE IS LIGHT...THERE IS HOPE...AND THERE IS A WAY.

Dear Everyone in pain,

     I know exactly what u r feeling. I am there and it is utter "H" on Earth.  Why can't the doctors just listen to us. They think they know it all and don't give us the respect we need and deserve. THIS PAIN isn't anything to sneeze at! This is hard and the pain is 24/7.

     This all started with me after a neck surgery on my C5-C6(ACD & F spinal diskectomy). My right arm bi-cep muscle started to burn and I went back to see the Neurosurgen that did my surgery. He ask me where the brunt of my pain was and I told him that my arm burned. He said that it was my C5..how? He put me on Lyrica, in which I didn't take for a yr. bc I didn't want to have to add anything to the pain medicine he had already prescribing, as well. I can say that I was always the kind that didn't like to even take a motrin for a headache, but after that pain kicks ur butt real good and it takes over, then yes, u will take the medicine prescribed.

     I do have to advise others of this important fact of something I wouldn't do ever again that could have added to what I am dealing with now. I must advise everyone out there to NOT have the nerve blocks, no matter what kind of pain u r dealing with. I was hit by one, I think in my nerve fibers surrounding my spinal cord and I wonder, if it isn't the cause of most of it, but with the pain ALL over, l donno what is going on exactly, but do know that the pain can be absolutely unbearable.:(

     I started having places come up on me like little tiny pimples with redness, swelling and burning pain come up on me to and other places that like someone took a knife and slashed me really good. After, I started taking the Lyrica all sorts of things started happening to me(this is a BAD medicine to have to take). I started swelling and my sed rate did get up to 55 and was seen by many Neurologists, bc I was balling up in a fetal position and wreathing around in bed like someone was torturing me. I literally felt like I was dying and it wouldn't end.

    Now, I am in bed, most of my day. At the least, I spend 80-90% of my time having to stay there bc, I can't use my muscles at all, to do anything hardly, but lay here and try to research my symptoms bc it sure doesn't look like the Doctors are doing much to find it. All they do is like to cover it up. It is hard for me to even type, but daggomit, I have got to do something or I will lose my mind. I am in such misery that I burn like I am constantly using all of my muscles. I feel like they are continuously working out and I don't have to do anyting. It feels, like I have been in the Gym, but NOO..If, I even try to use them, they cramp,burn, ache and will be more sore, it will feel like I have been beat with a baseball bat or even so bad that I feel that I have been run over by a truck. ..SO WRONG.I have even had times to where my leg will lock in a bent position and I scream to pull it back out or to straighten it.

    I truly believe that no one(docs, that is) wants to find the answer. They stick "Fibro" on us and send us on our merry..yeah...Away.They honestly feel that we are going to be satisfied with that diagnosis, but we know there is something far worse going on in there!! I have been diagnosed with Arthitis, as well.(Spondylosis and DDD of cervical,lumbar & Hip/joint). 

    I used to do anything I wanted to, but it has taken my life from me and I know it is hard on our family to truly understand the misery that we go through every single day, but it is VERY REAL and VERY HARD to go through and to not have someone to comfort us. If I didn't have my mom/dad...and a wonderful hubby, it would truly be unbearable. I am greatful so much to my son Bryan, who has helped me get through so many hard times. I love him so much and I do thank him. I must say that The Lord has been there for me at all times and He carries me most of the way. If I didn't have Him...I don't think I would have made it through this, at all.

     I pray that He will take this from us and let us have some of our life back. I hope so much that I can at least find what this has and that it is currable..mostly. I sure don't want to live like this...for I don't think that I can do it. I am strong, but this PAIN is so bad that I actually feel like it is going to kill me.

     Take care out there... ALL of u guys, who are suffering and I pray that it be The Lords will that we are comforted and hopefully, we can find a way...back to our lives again, soon. God Bless always.:)))<3 skeet65

VENTING....AND BLESSINGS

                      WE HAVE TO STAY STRONG....NO MATTER WHAT COMES OUR WAY.



I have these symptoms that don't fit w/fibro...and it gets me to thinking...maybe it is the Adrenal thing...that is keeping me so down. It is connected w/hormones. Which..brings a question to mind...do i really need a hormone shot when my Estradiol level is 231.3....that is up there. (1st trimester of preg...or ovulation phase...in which, i am neither...hmmm?
Oh..i don't know...what ever has taken over my body...is ABSOLUTE H...all the time AND all over.
The itching drives me mad, I have my back in scars, my arms, ankles,legs...everywhere, from scratching. Mmy hands burn especially when I use them alot and feel like my nerves are crawling all the time. The left will get where i can't even use it at all. It will go completely paralysed or parathesia...i guess.
One thing I noticed and don’t know if anyone else has experienced is I get sharp jabs like some one is sticking a needle in me in different areas of my body like my belly, feet, legs, sometimes face. I rub it and it will sting, it leaves for awhile but it hurts and is weird.
What is the weirdest of all...is yesterday i felt like someone had literally whipped me w/some leather straps mostly on the back of my legs, but my back felt it and i was absolutely miserable. Almost felt like i had run a marathon, had baseballs thrown at me...and run over by a truck....then, after @ 6 hrs. of that...IT DISAPPEARED  OUT OF THE BLUE....WHAT THE HECK DOES THAT?

OH....I JUST WANT ANSWERS...THAT WILL GET ME OUT OF THIS BED. DOC SAID THAT I HAD TO LIVE W/IT. HE FOUND MULTIPLE LAYERS OF MY BACK AFFECTED...SO, I ASKED HIM, IF SURGERY WOULD HELP ME. HE SAID THAT I WAS IN A CATEGORY 5...RIGHT IN THE MIDDLE. HMMM...WELL, I DON'T HAVE MUCH OF A LIFE. I AM STUCK IN BED MOST DAYS AND MY LIFE IS PASSING ME ON BY.
I SIT AND WATCH OUT MY WINDOW, BUT CAN'T PARTICIPATE IN ANYTHING...WHAT FUN IS THAT? I CAN TELL U RIGHT NOW...I AM NOT GOING TO BE STUCK IN THIS BED...BECAUSE I AM GOING TO KEEP LOOKING FOR ANSWERS, UNTIL I AM BLUE IN THE FACE.

GOD BLESS ALL...AND NEVER GIVE UP. IF, U FEEL LIKE THERE IS SOMETHING REALLY WRONG...U HAVE TO FIGHT, TO GET TO THE BOTTOM OF IT. KEY....FINDING THE RIGHT DOC, WHO WILL PUT THE TIME AND EFFORT...TO GETTING THE RIGHT ANSWER AND NOT JUST PUT A LABEL OR STICKER ON U...THAT COULD BE A MIS-DIAGNOSIS.  I BELIEVE THIS IS WHAT I AM DEALING WITH. :P


GOD BLESS ALL...AND COUNT UR BLESSINGS! (U DO HAVE THEM)  :)

THESE ARE TWO BLESSINGS OF MINE. MY YOUNGEST SON BRYAN AND MY HUBBY GARY. :D

MY OLDEST SON SHANE...A BLESSING, WHO I MISS SO MUCH. HE IS IN THE ARMY AND THIS MOM IS SO PROUD OF HIM! (Forgive me Boo...i am trying:)

...AND MY MOM AND DAD...WHO HAVE ALWAYS BEEN THERE FOR ME.
I HAVE BEEN SO BLESSED. I AM JUST SO SICK...AND HAVE BEEN FOR SO LONG THAT SOMETIMES I FEEL, THEY FEEL I AM A BURDEN. I KNOW, THEY LOVE ME..BUT I AM MISSING SO MUCH OF THEIR LIFE BEING STUCK BACK HERE IN BED.

I WILL GET THERE...I AM NOT GIVING UP. I WILL BE WELL OR BETTER ONE OF THESE DAYS...SOON. :)