WHAT IS IT THAT A PERSON NEEDS TO DO, TO BE ABLE TO HAVE A LIFE WITHOUT UTTER MISERY BEING IN IT?

I AM SO HURT...BECAUSE I HURT SO BAD, AT TIMES THAT IT MAKES ME FEEL, LIKE i AM DYING! AND I DON'T UNDERSTAND WHY CAN'T THERE BE ANY ANSWERS TO THIS. WHAT IS MAKING IT SO GOSH-DARN DIFFICULT TO GET SOME RELIEF. 
 I AM NOT TRYING TO OR JUST BEING DRAMATIC HERE....DRAMATIC TO ME, IS SOMEONE THAT IS ACTING...AND I AM NOT ACTING..ONE BIT. I WANT TO SCREAM, I AM SO TIRED OF HEARING THAT WORD BEING THROWN AT ME.

ONCE UPON A TIME...THERE WAS A GIRL WHO COULD DO ANY AND EVERYTHING SHE WANTED, BUT IT ALL CHANGED AFTER SHE HAD SURGERY. EVERYTHING HAD COMPLETELY STARTED TO CHANGE...SLOWLY AND HER LIFE DIDN'T EVEN LOOK LOOK ANYTHING LIKE HER LIFE BEFORE, BUT...GOD HAS A WAY OF OPENING OUR EYES AND OUR EARS, TO HEAR. 
IF WE NEED TO BE HUMBLED...HE WILL HUMBLE US, IN WHATEVER WAY NEEDS TO BE DONE.:)


BELOW, IS WHAT SOMEONE ELSE HAD POSTED, ON THE NET...THAT MATCHES MY SYMPTOMS, TO SOME POINT, BUT THERE ARE MORE WHERE HE COME FROM.

I have been having numbness in my left palm, left part of my lips, left side cheek, and in my left hand fingertips. It is not constant, it comes and goes when it likes. It is never all at the same time. today it is my left pinky and ring finger. The other day it was the left side of my lips and my palm. I also get dizzy on occasion, and sometimes see little stars. I have a panic disorder, when I tell doctors this they think the panic disorder sets off the numbness. It is the other way around, the numbness makes me have a panic attack. The numbness has only gotten worse since I got home from Iraq. I am only a 25 year old male, so it makes me worry cause i am so young to be having these problems. Thank you for any help.

White Warlock

                                              

I've experienced burning and needle-type skin sensations on various occasions over the years. Sometimes they were very painful, sometimes there were visible effects. With a little research, and a few tests on myself, I was able to pinpoint what was going on with me and it is especially noticeable if i have already a little bit of reddened skin due to sun exposure, and/or on an empty stomach.

My vitamin supplements. Check it out, you'll find that symptoms of overdose and toxidity of many vitamins include skin reactions similar to the ones you're experiencing. If you're taking vitamin supplements, this may be the culprit and you should reexamine just how much are in those little over-the-counter multi-vitamin packets, and whether it's too much for you. Check the RDI/RDA of vitamins, don't trust the DVs (percentage ranks) that are usually found on those friggin' containers. Some of those companies are just nuts with the quantity they put into a single tablet, and this is only compounded if you are taking a mix of vitamin supplements in addition to a multi-vitamin.

If you are not taking supplements, vitamin deficiency, oddly enough, can also result in skin reactions. Too much, too little, a problem.

caverdude

                                              

I began experiancing some stinging pain in my skin in April 2004, age 34. I thought it might have been an over exposure to a chemical called calcium stearate. Any information I find on that suggest it could be, but nothing quit describes my exact symptoms where this prikling feeling can move around my body to any location. Also somtimes its on my chest and back accompanied by redness. But no real rash and no blistering. I began feeling like it might be a nervous disorder, I have almost linked it to strong feelings of anger if I were to say be thinking about some matter and feel note that after I felt it, it was linked to the anger. So I began trying to stop worrying so and be calmer. This almost has seemed to help. I went to a doctor about the exposure to the calcium stearate, he said that it might very well be an allergy and put me on Prednizone and Allegra for about two weeks. This seemed truely to help. My 2nd day off of the prednizone and 4th day off of the allegra I began to feel wosened prickly sensations again, but not yet as bad as before. I cleaned my cargo van thoutougly of the calcium stearate even though the dust basically was spread all around and maybe even in the ventalation, it was a very find white powder. I just didnt know how to deal with it properly when I spilled it. Anyway I'm not totally sure that this calcium stearate is the problem at all. It might be coincidental, I was also having some periods of stress at this time. Also I have been using those hi energy drinks some and plan on stopping that to see if there is an effect. My attack yestarday was a few hours after drinking that "No Fear" hi energy drink. But yes this prickling feeling is not fun, I wish everyone the best of luck on finding out what is wrong. But at times I could swear it was tied to nerves.

aundya

                        

Hello.. I too am experiencing extreme burning pain all over my body. It started in Aug 2000 when i was involved in a car accident; i fell down stairs in Dec 2000 and another accident in June 2002. Since these trauma, i have experienced off/on symptoms of burning sensation internally... nothing you can visually see or feel, just pain! From the top of my head at times, my face, arms, legs and bottom of feet. I saw a neurologist and rheumatologist earlier to no avail. I have been told i may have fibromyalgia, but no luck in finding a doctor to treat me for that -- or even one that understands what the disease is or how to treat it. I feel like everyone thinks i am crazy or something! Any ideas of what type of doctor I can try next or treatment will be greatly appreciated.

I have taken Neurontin off/on for two years now.. it worked before, but now seems to make symptoms worse. Help!

akiraah

                                              

I am a 52 yr old female. I have had back injuries, knee and hand (wrist) injuries as well. I noticed after my first back injury I had a strange feeling on my left outer and part of the upper slight top thigh. That also included a tender and burning sensation on the outer skin. The internal feeling was such a strange and funny feeling hard to describe. That side of my thigh was so sensitive it was painful if anyone tried to touch it slightly. I was never able to get it addressed properly because doctors did not know or was sure. So I had to deal with that for years and with some physical therapy. I still have the same problem however it is nothing like what it was for years.

I stated all that because that was the first situation where I experienced the burning on one part of my body. I had a hysterectomy in 1999 after having that I noticed my body would stay internally hot continuously. I could not tell when it was cold outside by feeling. I have not worn a coat since that surgery. I rarely heat my home because when my internal heat and the outer heat came together it was just too much to bear. I spoke to my doctor but no one has been able to address that concern. Most people thought it was menopause. However I have been tested and as of yet have not been told that was the case and neither after testing was I put on any hormones.

Aside from the fact still to this day I do not sweat or anything like that as far as hot flashes are concern. As time went on the internal heat still exist but not as bad but still bad enough that I do not want too much heat because it just caused my skin to feel as if it were burning. I felt as though I was burning from the inside to the outer surface that started about in the spring of 2003, which was not strongly notice then, but it was there. However, I noticed last December I had a red spot on my right lower side of my leg. It was not painful but it was then I notice this burning sensation more. You could touch that red spot with no problem but by the next day the red spot had blistered as if I had been burned with something. Outwardly it still was not painful but you could feel the burning from the inside out. I had not realized until later I had another blister like this but I must have busted it under my clothing and did not realize it. That was the first one. I showed my MD the second blister and he thought that was very unusual and sent me to a dermatologist. I cannot remember the term he used after a biopsy but whatever the case he must of thought it was some type of virus because he started me on an antibiotic for some kind of herpes. He said it would stop the burning but it did not.

 

I than went to another doctor who had an MRI done and found I had three herniated disc among other things wrong in my spine and neck and stated I had neuropathy. She said that I had nerve damage that was causing this burning. I told her it gets so bad that it feels as though my blood is boiling but she said that is my nerves. In the mean while this burning has started to intensify. It got to the point I can feel this burning and this feeling of my blood boiling while I sleep and heavily sedated. I am tried of being looked at and dealt with like I am crazy. I have been having a hard time having someone to address my concerns. I go to the doctors and they continue to say nothing is wrong and they do not take all the test that should be done. Neither do they accept test results because for years they have constantly fought me each time I try to address my medical conditions so I can function as a whole person.

 I just wanted to know why I was burning. I was so upset because these doctors think I am crazy. In the meanwhile this burning is getting worse. I am also getting sharp needling pain in my inner thigh stretching across my private area from time to time and even down my legs. My whole body burns including my face neck, back and arms, the areas that have been injured. I need air to blow on me most of the time. Now if I were to get chilled the goose bumps you get when you are cold becomes painful with the burning. I seem to need the motion and a little cool to be able to endure. It seems my problem is graduating from one level of severity to another.

I do not know how serious this is and my doctors have to be writing something negative about me in my files because when I allow access to my records to travel with me from one doctor to another and my job they already have me prejudged and I do not get the proper care. I do not know where to turn and because I basically look healthy no one believes me. My weight is out of control and it is not due to being an over eater. I can't seem to lose the weight. I'm fatigue and weak all the time. I have now developed dark circles around my eyes and as long as my test results come back normal these doctors will only see you as crazy and try to put you on medicine for a mental state of being. And that is not it. I live a lone and I must provide for myself and I seem to be getting sicker and sicker by the minute because I can no longer address my concerns in the way I need because I think my medical record are tainted and why because if doctors don't know and don't want to admit they don't know they will say it's in our minds and try to put you on all sorts of drugs you may not need.

At least, I know that I have been given some of the strongest narcotics and THEY DON'T WORK! After a while, you can't help from feeling discourage among other things. My life seems to be wasting with these issues and sleep aptima. I am tired and the rest is a true issue. I can't get sleep, because this burning keeps me up and the sleep aptima keeps me too active. I'm a mess. Also there are not many you can talk to without people not understanding you are not a chronic complainer, you're just seeking and hoping to find the solution.

So please, if someone knows what this could be or can direct me to the kind of doctor who takes their practice serious enough then there might be hope for all of us. But how do you find that doctor who will help us, if they don't try to really find the root of the problem? Thank you so much for reading this and what ever help u can provide, for us that are suffering.

burnie

                                              

Hello,
I was self diagnoised with type 2 diabetes about 5 years ago after undegoing extensive testing for gastro problems. My symptoms were chronic nausea especially early morning and would go away sometimes after my daily vomiting routine was over. Never the less I was suffering everyday like pregnant women with bad morning sickness. When I informed my doctor of my findings, the same doctor who treated my grandfather for diabetes he put me on glucontrol and my symptoms got considerably better in a short time. My blood sugar was at 675 when found. Over the past 7 months I have been suffering with a tremendeous amount of burning all over my body. It comes and goes at certain times of the day. When it comes on the first symptom is the skin feels cold to touch very cold. And then this stinging burning(like sunburned)pain spreads all over. Its almost always in my legs and feet with numbness additionally. Covers the chest, back of neck, shoulders, hips and lower belly area as well as the happy organs. I have been to a neurologist who said it is neuropathy. He prescribed Neurontin 900 mgs daily which does absolutely nothing to relieve the pain. However I developed thoughts of suicide while taking it and stopped it completely. Mentally all is okay now however I am in a bunch of pain still. The doctor has prescribed oxycodone which takes the pain away but has made me dependent. I would love to find out why this happening to me so I can stop medicines and live again. Maybe its some alergy. Thanks for listening.

alpinevalley

                        

I have had the burning skin sensations since Sept 2004. It started in the clavical area on the left side of my neck and spread to the back of my neck. I was treated for shingles and was treated with Valtrex. It didn't help. Now burning has spread all over my face,arms and neck and left hand. It also is on legs and left foot. I have had so many blood tests to rule out lupus, RA, MS, etc. all of which cause burning. Rheumatologist wonders if it is drug-induced lupus, but all the blood tests for lupus were negative. Do have a positive ANA, but that is the only blood test that came out positive. I am on neurontin - 3 pills x 2 times a day. Also, rheumatolgist prescrived peroxican 20 mgs daily (NSAID). None of these seem to help the burning. Skin turns red when I get the burning really bad. Went to ER once and they told me to say away from anything with niacin in it (was taking silver centrum and stopped that). In fact, my internist took me off all drugs and all vitamins except for synthroid which I have to take daily. Also still taking neurontin and peroxicam, but like I said they don't help. My rheumatologist is concerned that I continued burning  and could have damaged, my nerve endings if not controlled. I am very concerned about this too. So far, I have seen my internist, neurologist and rheumatologist, but I wonder if this could be endocrinology related. My internist also wonders, if my body is producing too much histamine and had me taking a urine sample (over 24 hour period) and turn it into the lab. Did that yesterday, and it will take some time to find out.

Does anyone have any idea what causes this awful burning. I have it all the time and it is so bad, sometimes.

Thanks.,
alpinevalley       

Carrie67

                                             

To: Burnie and Everyone

I have been having a burning sensation for the last year also. It started in September of 2003 Labor Day weekend where my face when numb and then this burning like sensation would come over me. I had a EEG done last November came out negative,had a MRI done on my head in February of this year and have had a MRI of the sinus done in October all came out normal. Now the burning sensation has done down to my legs and feet. Right now as I type this my feet are burning and so are the calfs. The back of my head and ears are burning also. The doctor has put me on Neurontin 600mg two to three times a day and if worked for about a month but now the burning is getting worse. I have had blood test also and everything came out normal. I feel fine except for this. I am also on previcid for acid reflex. I hope that someone can give me an answer of what this is and if this is treatable or curable.I would just like a diagnosis and to know that this is not life threating. I have an 8 year old girl and a 3 year old boy and want to see them grow up and have children of there own. I lost both my parents very young my dad age 51 to cancer and my mom age 57 to a blood clot in the lung. Can anyone just tell me if this is deadly. PLEASE.
Thank you for listening and I hope we all get better soon.
Carrie67

(WOW...THIS ONE, SOUNDS A LOT LIKE ME)<3 Karen



I thought, I was the only one that posted @ having almost symptoms that match. I wonder, if this person get knots that come up on the face, but inside or around the temple area? I woke up this morning with another ONE, then another one came up behind my ear. They seem to come and go like my symptoms change, but this KNOT, is no ordinary pimple and after it has been on my face or wherever for a little while, it feels as if, some kind of head forms on top (yuck, gross) ...THIS feelss like something else, but WHAT?

I never know what kind of day, I am going to have, but try to always stay positive and pray to The Lord that He will keep me around a little while longer, if possible, so I can be there for my kids and my parents. It is time for them to need me! 
This stuff that is going on in my body is bad and really challenging to me... I know, there must be others and they have found this and I hope they respond. I decided to NOT give up and to keep searching for anyone, who can give me some kind of lead to what in the world THIS IS. I am hurting all over this morning like something is terribly wrong and i just want to get WELL...that is all I want.:((
God knows, ALL I want is to get well and to be able to do the things I once done...like SING.:))<3

I am concerned a lot @ the (VA) Venous Anomally, in the back side of my head. (Docs lingo 4 it, is the left cerebullar hemisphere) It is behind my left ear that feels funny a lot and I do have what is called an empty sella. It does feel, like that is where it is originating, but I may be wrong. 
I get these knots everywhere...on the top of my head too, especially where, I was hit on top of the head, when I was in an accident after a friend of mind, hit something in the road. I hit my head on the top of the car...hard and I could have a contusion of some kind. It is possible that I could have a subdural hematoma, but I pray not.
 
I am having all of this strange numbness, burning, veins feel like they hurt, LEGS kill me everyday and keep me from being able to stand for the cramps in my knees and feet. It seems to be in all of my joints like the knees, elbows, ankles and wrists, but also the muscles cramp up so bad any area it chooses fit, to pick...etc..

The symptoms seem to change and move, but it can cause these "episodes", I call them, but they are very frustrating and debilitating and the docs come up with Fibro...this is something besides that bc my skin is affected with these tiny little pimples or boils that could come up anywhere. I have experienced places where my muscles are just depleted and it was like they were sculpted away, carved and IT, felt like it too.:(

I get this strange feeling behind my left ear that fills full and swollen. The left side of my face will draw down like I am having a stroke and only the left side feels this numbness and of course, the whole left side of my body. I have had one stronger episode than, any others.

I went completely paralyzed on my whole left side @ 5 or 6 mos. ago and I couldn't MOVE anything on that side at all. It felt like someone was holding them down and I had no control. WHAT caused that to happen? In @ 30minutes, I could move.

I have so many symptoms of nausea, weakness, fatigue, sensitivity to light, blurry vision to where I can't see 10 inches in front of my face, eye pain, jaw pain, arm pain(left), muscle cramps and these knots, under the skin that HURT. THey swell up in that area, like some giant knot under the skin. I have sinus problems, vitamin D deficient, pre-diabetic, cholesterol is elevated...no high(247) and my Triglycerides(250). My hemoglobin was 97 and Alkaline phosphatase was high enough and Iron, Serum levels and so many other things. I can't remember anything these days and have to write everything down to keep up with it. This is why there is SOOO much here. If I have to reflect upon it, for any reason...I will have it.(another bad symptom, my memory IS going, going...almost gone, BUT I am trying to hold on:)..so, if I repeat anything, u will know why.:P

A lab professional talked to me, on the phone, for over 2 hrs. and told me that she thought it was my Thyroid, but then settle in on a Bacterial, maybe some kind of....yeast...hmm? So, this is all I can think of this morning to search for answers again, since I can't stay on the computer long b4, my eyes start hurting. I will get a symptom's flair, so I limit my time.

 Oh, I have been dx'd with Degenerative Disk Disease, but it hasn't been proven and I was only told that by one Nuerosurgen. The one that did, my surgery (ACD & F-spinal diskectomy of my C5-C6). He also said I had a Chiari Malformation(later to be discovered, it was tonsilar ectopia. Another is Spndylosis, which I found to be bad, I do have a right fractured rib that I didn't even know I had until it was brought up, by a doc and it made me feel like how would I not know my rib is fractured. Wouldn't it hurt all the time? I know that I have back problems too, so I can understand some pain, but this is BAD... It is something stacked on top of the disk herniations that I have. I need to find out what this is, if it could be serious enough, to possibly...kill me, especially if this is some deep-rooted  kind of Bacterial infection that has gone on, for TOO long.:((ALL I WANT TO KNOW IS WHAT THIS IS???? This is ONE of the most painful phenomenons anyone canever experience, close to death that is.:(( I believe this is "H" on earth and a curse for anyone to deal with, but that is what I think, because I have to get through it myself and it is soo real and hard. It is trying to take my mind with it, I think...but I won't surrender that easily.:P 
IF, I could just find the right Doc that could HELP me fix this or at least get through it...anything is better, than what I am going through now!
No one should ever have to endure such pain, on a daily basis, for so long and can't even find a decent Doc to relieve it from me. IT is abslutely horrific to feel these painful knots that I have all over my body, even every muslce in my body has these in them and I am losing the use of my arms and legs.:((( What can a person do @ these monsters that come into ur life and utterly destroy it, from the inside out!?!? God Bless all of u, who are suffering with this debilitating disease...WHATEVER IT IS.:)<3 K




Pain is a humbling experience.Here we vent our frustations to therapeutically deal with our situation. Some of us deal with so much pain that we feel down and depressed from it, but if we would focus our minds on The Lord, He will help us through our days.:)))<3 K